BETTER-ED

BETTER-ED

During the COVID-19 pandemic, Canada’s research response did not have the adequate systems in place to save lives. The pandemic has shown that engaging patients in research is more relevant than ever, especially for marginalized patients who were the hardest hit. Climate change is also adding new challenges to caring for patients in the emergency department (ED). New research infrastructures to ensure better pandemic and climate change preparedness are needed. The United Kingdom (UK) demonstrated that a highly performing health system can embed research into practice using innovative ‘platform trials’.

Platform trial benefits include: (1) multiple emerging questions can be evaluated simultaneously; and (2) data that is already collected can be utilized to increase the likelihood that patients are randomized to treatments more likely to be beneficial. However, platform trials create new challenges about how to meaningfully involve patients in their planning and also about how to obtain consent.

The Canadian Emergency Department Research Network (CEDRN, pronounced “sedrin”, previously CCEDRRN) was created during the pandemic as a multisite observational registry to respond to decision-maker and patient partner questions. Its Patient Engagement Committee (PEC) guided its research questions and methods. Building on the UK’s experience, CEDRN aims to pivot its research infrastructure including its PEC to support future platform trials in EM to better prepare for pandemics and climate change.

The overarching aim of this project is to expand CEDRN’s patient-oriented research capacity to enable relevant and timely platform trials in Emergency Medicine (EM) to address pandemic and climate-mediated disaster preparedness. Its specific aims are: (1) Build patient-oriented research capacity in EM that is equitable, diverse and inclusive; (2) Identify patient-centered research priorities suitable for future ED platform trials; (3) Explore what consent models are acceptable to ED patients.

Research Activities

Our patient engagement committee (PEC) now counts 7 members from 4 provinces.

Consensus Report #1: This report presents the preliminary research priorities that were identified by the members of the PEC and the researchers of the Network of Canadian Emergency Researchers in February 2024.

Term of reference: PEC Terms of reference endorsed in August 2024.

Adaptive Platform Trials in Emergency Medicine: Academic Symposium of the Canadian Association of Emergency Physicians, June 2024, Saskatoon, SK.

For more information: Martyne Audet, Research Coordinator // martyne.audet.cisssca@ssss.gouv.qc.ca

Dans un esprit d’amitié et de solidarité, l’Université Laval rend hommage aux Premiers Peuples de ces lieux. Étant à la croisée du Nionwentsïo du peuple Huron-Wendat, du Ndakina du peuple Wabanaki, du Nitassinan du peuple Innu, du Nitaskinan du peuple Atikamekw et du Wolastokuk du peuple Wolastoqey, nous honorons nos relations les uns avec les autres.

In the spirit of friendship and solidarity, Université Laval recognizes the First Peoples of this land. Here, at the meeting place of the Nionwentsïo territory of the Huron-Wendat people, the Ndakina territory of the Wabanaki people, the Nitassinan territory of the Innu people and the Wolastokuk territory of the Wolastoqey people, we honour our shared relationships.

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